Adult Leukemia
Table of Contents
Foreword
Preface
1. What Leukemia Is
Understanding blood
How leukemia begins
How leukemia is diagnosed
Kinds of adult leukemia
Acute leukemias
Chronic leukemias
Other chronic lymphocytic leukemias
Preleukemic conditions
What leukemia is not
2. Signs and Symptoms
Bringing concerns to your doctor
Acute leukemias
Chronic leukemias
Hairy cell leukemia (HCL)
3. Diagnosis
Diagnosis by blood work
Who to see for testing
Questions for a first visit
Comprehensive blood testing
Hearing the diagnosis
Emotional responses to diagnosis
4. Tests and Procedures
General information
Specific tests
5. Subtype, Staging, and Prognosis
Blood tests yield subtype and staging information
Acute leukemias
Chronic leukemias
Hairy cell leukemia
6. Risks and Causes
Who is at risk for leukemia
Causal information
Viral links to leukemia
Speculative causes of leukemia
Prevention and reducing risk
7. Treatment Options
The range of treatment theories
Standard therapies
Chemotherapy
Rescue drugs
Biological therapies
Choosing the best treatment option
What to expect during treatment
Treatment protocols
Preparation
Scheduling
Administering therapies
8. Treatments for Individual Leukemias
Treatment protocols
Acute leukemias
Chronic leukemias
Adult T-cell leukemia (ATL)
Prolymphocytic leukemia (PLL)
Hairy cell leukemia (HCL)
Splenic lymphoma with villous lymphocytes (SLVL)
9. Transplantation
Bone marrow transplant basics
Types of bone marrow transplants
Considerations for patients and families
How transplants are done
After treatment
Long-term effects
Becoming a donor
10. Clinical Trials and Beyond
Who should learn about clinical trials?
What are clinical trials?
Why participate in clinical trials?
Guinea pig?
Placebos
How clinical trials are run
Where to go for clinical trials
Finding trials for leukemia
Why research trials on your own?
Getting admitted to a trial
Once you are accepted
Payment
Future treatment directions
Research in biological anticancer substances
Research in chemotherapy
11. Communicating with Your Medical Team
Establishing a relationship with your doctor
Talking with your doctor
Medical case managers
Second opinions
Communicating with the hospital staff
12. Side Effects of Treatment
General observations
Why do side effects arise?
A word about prednisone
Side effects of treatment
13. Stress and the Immune System
What is stress?
Responses to stress
The effect of stress on the immune system
What can we do?
Stress reduction techniques
Stress medications
14. Getting Support
Specific needs
Communicate these details
Typical reactions
How to communicate about needs
Sources of support
Loved ones
Good friends
Support groups
Coworkers
Individual and family counseling
Organizations that focus on help
Challenging moments
15. Insurance and Finances
Health insurance
Financial issues
Disability income
Employment issues
Record-keeping
Traveling for care
16. After Treatment
Leaving the world of treatment
Moving on
Emotional responses
Social and professional after-effects
Lingering symptoms and side effects
Late effects and complications
17. Recurrence
Recurrence defined
Causes for recurrence
What to look for
When am I safe from fears of relapse?
Treatment options
Transformations
Emotional responses
Mobilizing for treatment again
Adjusting to treatment again
What family and friends can do
What the patient can do
18. If All Treatments Have Failed
Setting new goals
Emotional concerns
Physical aspects of dying
Can we make dying easier?
Planning your own memorial ceremony
19. Researching Your Leukemia
Why researching helps
What you'll need to begin
Ways to find information
Getting started
Research papers from medical journals
How to obtain medical textbooks
Finding clinical trials
How to find support groups
How to verify drug information
Verifying your chemotherapy dose
How to interpret test results
How to assess unproven remedies
Other unique web resources
What next?
A. Resources
B. Normal Blood and Marrow Test Values
C. Body Surface Area in Square Meters
D. FAB Staging of Acute Leukemia
E. Genetic Classification of the Lymphocytic Leukemias
F. Progression of Cell Development
G. Leukemia Drugs
Notes
Glossary
Index
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